Another Update that has been far too long in coming.

Every time I say to myself that I am going to some how find the time to keep this blog going something comes up.

Life is hard as a single parent.
Hard, busy, stressful but I love my little human even on the worst of days.

How are we nearing the sixth year?

We are two days in to the first grade and I have already had to contact the principal with an issue.
An issue that lead to a huge staff meeting, (bonus that I have not had to attend) because people CLEARLY  need to be informed how to talk to and deal with a disabled adult. (How do people, not know to treat us as ADULTS who are in control of our own lives I don’t understand)

The teacher is now apparently beside herself because she was not seeing the whole picture.

The issue.. my crossing the parking lot to take my daughter to school. Using a handy parking spot with my sticker, and crossing to use an accessible curb.

Sounds all well and logical right?

Apparently not, according to her and out dated made by an idiot rules, I had to walk to the other end of the parking lot (farthest it can be from the accessible parking) to the cross walk.

Right.
So, when she said if I had an issue with it, to take it up with the office. So of course, I did.

It also suddenly put me at the front of their making of the 90 year old school accessible.
As a disabled adult you see things differently than an able bodied adult. So, they are asking for feed back which I am giving them all that I can.

Disabled children – don’t always have the words to say what they need and as kids, they are not always taken seriously.
So there was no way that I would ever back down from this.

Am I a massive introvert, who is the shyest person you could ever meet? Absolfreakinglutely. But I will be damned if a disabled child will miss out on what they need because I didn’t step up when the chance came up.

I have since discovered that her own staff (a temp) has a need of the spot. But has never brought issues forward.
Given how disgustingly riddled with discrimination our school board has been, I can only assume she never brought it forward out of fear for her job. Or her needs are just that different.

I can’t hold the possibility of fear  against her because she had right to fear for her job. Hate ran this school board for a long time.

So that is how I began our second week back to school at 845am. Fun times ahead I can tell.

We have also been going to church since shortly after Easter.
Kiddo LOVES it.  So it has helped me stick it out.
I love, a lot of things about it, but some other things are harder.

Admittedly, I have asked myself more than once, if it is all worth it. But then Kiddo will ask me to read the bible to her or a bible story and I will be in awe of her and remember why this was so important to me.

Why making sure she has everything I did not is so important.

Why making sure the church works for inclusion as much as the rest of the world is so important.

Why despite the struggles I have with my own place in our church, I stay and I fight to get more comfortable. I struggle through feeling like we are Sunday visitors and I do what I can to have us be more.

I’ve always been willing to go to bat for disabled issues, despite the anxiety and shyness and I will continue to do so. But some days I just there were more disabled adults in the church to help.

It is such complex issue because no 2 disabilities will be the same – even if their medical terminology is.

The problem here, in part is that church numbers are so low, and a lot of congregations are older generations are set in their ways. (Add in the small town ignorance..ugh)
Though I have found the more issues some have as they age the easier they have accepting disabled. But it shouldn’t have to wait that long.

So it is giving me a lot to think about. A lot to think about and a lot to have to fight for.
A fight that often doesn’t feel like this blog is the right place.
It sometimes feels like a vlog may be the best outlet for some of the more wordy things. So I am pondering that and trying to figure out the best way for me – the introverted shy person to sit in front of a camera and talk. Haha

I am reading.. I swear it. I know this post is very non book like. But I have been choosier on my reads because I am entering a new chapter of life and I want the book related posts that I do get to, to be worth talking about but also something that is important to me.

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